We've been waiting on Steve's MS shots to arrive...we gave them an extra week, he's down to one shot and he decided to call today. They have never been late...they are usually right on the nose at 2wks shipment or even a few days early. Steve called the drug company and they said it was noted that our shipment should have been AT our house on the 14th. Further investigation.....FedEx has lost Steve's shots!!! They have either delivered them to the wrong place or lost them entirely!!! Due to them being packed with ice packs to control the temp in the injector needles...that is a $3500 shipment($5000 give or take before insurance for 12 needles) that went bad!! Thankfully the shot company filed it as a lost script, is doing an investigation and refilled Steve's shots. He may run out of shots before the new shipment arrives but at least they didn't charge us full price for a refill (we are in a copay program after our health insurance pays...insurance etc could have easily said So Sorry but that's your problem and charges us for a full refill sans insurance!!), they are resending them and they are dealing with Fed Ex. The drug company is VERY irate with Fed Ex!!! I'm hoping that the shots are just lost and that someone didn't steal them or think they were getting some pain meds....the side effects of Avonex is a VERY high fever, flu like symptoms and all over body aches. Granted if one of the employees that should have delivered them is suddenly out with the flu lmbo culprit found LOL
Update....new shipment of meds arrived...via UPS overnight! Very thankful for the shipment,for insurance reapproving it and the drug company researching it
Kaya Rain
Our beautiful daughter.
Tuesday, April 21, 2015
Monday, April 20, 2015
Sunday, April 19, 2015
Life with Kaya.....never dull ;)
Our fave little minion wink emoticon Life is never dull with this wonky haired girl around!!
1. "Ohhh I think you got shampoo in my eye!"...told her I was sorry but it was conditioner not shampoo. "Well you say potato I say Patato...it's all the same" LMBO
2."You know I graduate next month. I didn't even realize that. Of course I didn't realize I've been going an extra thirty minutes every day either....."....LOL
3. "Hey Mamma you can borrow my Hello Kitty backpack when you start school." Told her I'd be starting in early May and she'd be out in late May but that I can do mine at home. "Well...you can use it to carry the books to the computer ok? I'm trying to share...goodness"
4."I am completely full from supper. COMPLETELY. Oh, wait I have room, just enough room in this section of my tummy for a packet of gummys. Just barely enough room."
5. "I told C in my class that I have ate and I like worms with cheddar cheese and ants in glass candy (her Uncle Jonus sent her some...yes she liked them lol) He said that was gross. I told him hey, I like it that's all that matters and that no I do not just eat any ole bug" LOL
6." I think Aunt Lindsey's baby boy is going to be this big when he comes out ...(spreads her hands out to about 2 ft.)" I made a face and said I bet she hopes he's a bit smaller than that. "Hmm I don't know why. Havin' a baby can't be that bad and he has to be big enough to do stuff." Told her she best not wish for Aunt L to have a 2 ft baby LOL
7. "Daddy get over it. A tomato is a fruit. You can call it what you want but you like fruit so you should like a tomato." Steve made a face and said he doesn't like tomatoes and he says they are a veggie. "Daddy a scientist listed them that way so you're going to have to face it. It's a fruit. It may not look like a fruit, smell like one or taste like one but it is. Now let it go" LOL
Nope, never a dull moment around the ole Hacienda smile emoticon
1. "Ohhh I think you got shampoo in my eye!"...told her I was sorry but it was conditioner not shampoo. "Well you say potato I say Patato...it's all the same" LMBO
2."You know I graduate next month. I didn't even realize that. Of course I didn't realize I've been going an extra thirty minutes every day either....."....LOL
3. "Hey Mamma you can borrow my Hello Kitty backpack when you start school." Told her I'd be starting in early May and she'd be out in late May but that I can do mine at home. "Well...you can use it to carry the books to the computer ok? I'm trying to share...goodness"
4."I am completely full from supper. COMPLETELY. Oh, wait I have room, just enough room in this section of my tummy for a packet of gummys. Just barely enough room."
5. "I told C in my class that I have ate and I like worms with cheddar cheese and ants in glass candy (her Uncle Jonus sent her some...yes she liked them lol) He said that was gross. I told him hey, I like it that's all that matters and that no I do not just eat any ole bug" LOL
6." I think Aunt Lindsey's baby boy is going to be this big when he comes out ...(spreads her hands out to about 2 ft.)" I made a face and said I bet she hopes he's a bit smaller than that. "Hmm I don't know why. Havin' a baby can't be that bad and he has to be big enough to do stuff." Told her she best not wish for Aunt L to have a 2 ft baby LOL
7. "Daddy get over it. A tomato is a fruit. You can call it what you want but you like fruit so you should like a tomato." Steve made a face and said he doesn't like tomatoes and he says they are a veggie. "Daddy a scientist listed them that way so you're going to have to face it. It's a fruit. It may not look like a fruit, smell like one or taste like one but it is. Now let it go" LOL
Nope, never a dull moment around the ole Hacienda smile emoticon
Saturday, April 18, 2015
Awesome family time
We went to Addie's first soccer game and we had a ball!! The kids had a blast, Kaya LOUDLY cheered Addie on and it was nice sitting with family watching the game. We let the girls play at the park attached to the soccer field for a bit before heading home.
First day of mowing, raking and the such lol I'm one of those nuts that loves to mow so I usually do it while Steve weedeats etc. We do trade back and forth though but once the dead heat of summer hits I do most of it because he can't take the heat. So I really enjoy the time we get together doing things :)
Of course I got the mower stuck in the drainage ditch like I do every year lol I only do it once but it's always the first time I mow LOL I tried to get the blasted thing out,,,,no such luck so Steve had to save me LOL I think I overestimate my turn around on the corner ;)
We had Addie, her Mamma and her Mamma's boyfriend over for hotdogs on the fire pit, smores and chips and dip :) Wonderful time was had by all just relaxing by the fire talking and laughing. The girls played on Kaya's swings, in the yard, on bicycles and of course on the trampoline. They are two peas in a pod :)
First day of mowing, raking and the such lol I'm one of those nuts that loves to mow so I usually do it while Steve weedeats etc. We do trade back and forth though but once the dead heat of summer hits I do most of it because he can't take the heat. So I really enjoy the time we get together doing things :)
Of course I got the mower stuck in the drainage ditch like I do every year lol I only do it once but it's always the first time I mow LOL I tried to get the blasted thing out,,,,no such luck so Steve had to save me LOL I think I overestimate my turn around on the corner ;)
We had Addie, her Mamma and her Mamma's boyfriend over for hotdogs on the fire pit, smores and chips and dip :) Wonderful time was had by all just relaxing by the fire talking and laughing. The girls played on Kaya's swings, in the yard, on bicycles and of course on the trampoline. They are two peas in a pod :)
Thursday, April 16, 2015
Kaya's first field trip
I wish the school had requested parent volunteers but I guess they opted not to due to the amount of teachers, teacher's aids and such that went. The kids got to eat at a cool park the next town over and to visit the WonderLab...a really cool science and hands on building.
Kaya had a blast and we loved hearing her chat about everything she did, saw and was involved in. Although she did get told to not ask repeatedly "Why are we lining up Mrs W?" LOL
Very glad she had a great time and wants to go back to WonderLab. Love her so excited over science, that she had a great time and did so well. Looking forward to many more field trips that we CAN go on and be involved in :)
Kaya had a blast and we loved hearing her chat about everything she did, saw and was involved in. Although she did get told to not ask repeatedly "Why are we lining up Mrs W?" LOL
Very glad she had a great time and wants to go back to WonderLab. Love her so excited over science, that she had a great time and did so well. Looking forward to many more field trips that we CAN go on and be involved in :)
Tuesday, April 14, 2015
 |
| Couldn't be prouder of our girl!!! She chose her own experiment, did all the testing required and helped glue everything to her board how she wanted. And....she won first place in her grade/category :) VERY proud of her and I won't lie...I LOVE that she is so into science!!! All the kids did great and we had a ball checking everything out at the science fair. Purdue, IU, the local library, a gem club and the local science and magic clubs all had tables with interactive projects and the kids love that!! The school provided either a snack or meal. |
Saturday, April 11, 2015
Two sweeties feeling less than great
Kaya is finally starting to NOT run a fever and feel better. It was one long week of her not feeling great, coughing and such. She only missed Monday from school and made me go to school and pick up her work so she'd have it done. I am very thankful that the prep inhaler she's been using has been working...no crackly sound in her chest etc. I cannot stand when she is so miserable.
It's been a crazy week of appts....Monday I took Kaya to the dr while Steve felt less than great. Then Tuesday morning I ran my Mom to the dr because she was under the weather (bad bronchitis, two shots in the hip and a strong dose of meds for home) then by Tuesday night Steve's fever shot way up and he was miserable...so a trip to the dr with him.
They decided Steve had an infection somewhere. His lungs were clear, his nose was fine, his ears were fine. The infection was somewhere and his body was fighting it. They gave him an antibiotic and told him lots of rest. That is the scariest thing with MS. MS itself won't kill you...but it weakens your immune system so much that an infection, the flu or pneumonia can kill you. Hearing the dr say an infection somewhere made me edgy. Thankfully the meds worked and after about 3 days his fever let go.
So very little sleep for Mamma this week. I've not missed work but more than once I could have napped on my desk lol By Friday I had only 3 hrs sleep the night before and I swear I was walking in my sleep at work.
I detest when people at work complain and demand to go home over silly things or pets when others of us take our jobs and obligations seriously and have things going on at home not everyone knows about. But we keep a smile on our face, treat others nicely and get our jobs done!!
I wish too others would take things seriously when I tell them about it. I've got to the point that I don't really say too much to some because....they won't ask about Steve or Kaya, check on them etc so why bother??!! I wish that some would realize that something serious could happen to Steve then how would they feel? I don't know. Their cross to bear I suppose......
It's been a crazy week of appts....Monday I took Kaya to the dr while Steve felt less than great. Then Tuesday morning I ran my Mom to the dr because she was under the weather (bad bronchitis, two shots in the hip and a strong dose of meds for home) then by Tuesday night Steve's fever shot way up and he was miserable...so a trip to the dr with him.
They decided Steve had an infection somewhere. His lungs were clear, his nose was fine, his ears were fine. The infection was somewhere and his body was fighting it. They gave him an antibiotic and told him lots of rest. That is the scariest thing with MS. MS itself won't kill you...but it weakens your immune system so much that an infection, the flu or pneumonia can kill you. Hearing the dr say an infection somewhere made me edgy. Thankfully the meds worked and after about 3 days his fever let go.
So very little sleep for Mamma this week. I've not missed work but more than once I could have napped on my desk lol By Friday I had only 3 hrs sleep the night before and I swear I was walking in my sleep at work.
I detest when people at work complain and demand to go home over silly things or pets when others of us take our jobs and obligations seriously and have things going on at home not everyone knows about. But we keep a smile on our face, treat others nicely and get our jobs done!!
I wish too others would take things seriously when I tell them about it. I've got to the point that I don't really say too much to some because....they won't ask about Steve or Kaya, check on them etc so why bother??!! I wish that some would realize that something serious could happen to Steve then how would they feel? I don't know. Their cross to bear I suppose......
Subscribe to:
Posts (Atom)