Kaya Rain

Kaya Rain
Our beautiful daughter.

Sunday, July 21, 2013

Drs appointment was a success

  Alot of anxiety and worry about the drs appointment that was Friday. Worked a straight shift with no lunch so I could get off to go with Steve. 
  For once the drs appointment turned out to be great! Dr B said that Steve had perfect blood pressure, has lost weight, has only 20 lbs to go to his target weight he wants and the dr agrees with, his neck cord lesion stayed the same, no new lesions and his MRI actually looked clearer this time than it did last year :) :) That means he's not had a relapse yet, that his body is fighting it, that his shots are doing something,and even though there is NO guidebook for MS what we are doing may be helping. Dr B praised him for eating very few processed foods, for eating fresh meat instead of large amounts of store bought, and that she honestly couldn't tell him anything to change or to work on because he was on the right path. To watch his headaches and leg cramps if they increase, to remember to stay hydrated and to rest when needed in the heat.
  I know we looked like smiling idiots coming out of the room and down the hall lol but..it's great news. Steve's horribly tired spells early this summer was probably from overdoing it in the heat..a big NoNO with MS and not a start to a relapse. A relapse is when the body eats the melanin and destroys the nerve...you will see extreme tiredness, possible loss of use of something (voice, speech,eye sight, limbs etc). So we know that when he starts feeling that tired what it could be and it worries us. Just glad this time it was too much work in too warm weather.
  Kaya had promised her Daddy a special candlelight supper if his appointment went well. So she got to keep her promise. Even though she decided it was going to be candlelight dessert lol She made him a beautiful homemade lemon meringue pie and we ate it by candlelight after supper. She managed to strike me nearly speechless when she asked Uncle J to turn on the music and make it the Hanukkah song. Asked her why. "That song is about miracles and light. We are having both" :) She humbles my heart, opens my eyes and gives me fresh perspective on so many things.
  Sooo no appointment for six months and we'll take it from there. :)
 Also on a good note..we were accepted into the shot program for another year :) We have to be interviewed every year to stay in it. Our insurance hadn't changed significantly etc and his med price actually went up a bit. The guy called Thursday night and told us we were going to be allowed into it another year at the same price :) BIG relief. After insurance and without the drug company co pay program Steve's needles would be almost 3000 dollars for 12 needles..3 mo worth. 

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